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FINDING CURES TOGETHER<sup>SM</sup>

A Call for New Participating Institutions! 

AACR Project GENIE is accepting applications for new Participants from non-profit institutions directly involved in the care of cancer patients nearly a full year ahead of schedule. To apply, complete the application at the link below by 11:59 pm ET, May 1, 2017.

https://form.jotform.com/70574897434166


About Participation in AACR Project GENIE

Project GENIE's approach to data harmonization is such that each participating organization can continue to operate how it best sees fit while simultaneously contributing its data to the project. In this manner, future participants can and will be easily added once the pilot phase of the project is concluded, and financial milestones are met.

Founding Consortium Members and Phase 1 Participants

Informatics Partners

Selection Criteria for Founding Participants

  • A manageable number

  • Sufficient data to answer a clinical question within two years

  • Established CLIA/ISO-certified clinical sequencing programs

  • Expertise in the clinical and bioinformatic challenges of converting big clinical data into knowledge

  • A willingness to share:

    • Clinical cancer genomic data

    • Longitudinal outcomes

Selection Criteria for Informatics Strategic Partners

  • Significant prior experience in similar projects

  • Secure, HIPAA-compliant infrastructure

  • Established and accepted platforms

  • Significant bioinformatics expertise

Requirements of Participating Institutions

  • Provide 500 genomic records to start; 500 each subsequent year of participation

    • Data must be CLIA- or ISO-certified

    • Limited Data sets as defined by 45 C.F.R. § 164.514(e) will be provided

    • If de-identified datasets are provided, the process must adhere to the project’s established protocol

  • Agree to provide the requested clinical data elements

  • Maintain IRB approval

  • Meet data standards and deadlines

  • Participate in meetings

  • Participate on committees and subcommittees

  • Execute the Master Participation Agreement and agree to all exhibits, including the Data User Agreement

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