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FINDING CURES TOGETHER<sup>SM</sup>

New Participating Institutions

The open call for new participating institutions is now closed. Please direct queries regarding participating in the consortium to Shawn Sweeney at shawn.sweeney@aacr.org.

Applicants meeting the participation requirements below were judged based on the following criteria.

Participation in AACR Project GENIE

Project GENIE's approach to data harmonization is such that each participating organization can continue to operate how it best sees fit while simultaneously contributing its data to the project. In this manner, future participants can and will be easily added once the pilot phase of the project is concluded, and financial milestones are met.

Founding Consortium Participants

Informatics Partners

Criteria for Informatics Strategic Partners

  • Significant prior experience in similar projects

  • Secure, HIPAA-compliant infrastructure

  • Established and accepted platforms

  • Significant bioinformatics expertise

Requirements of Participating Institutions

  • Provide 500 genomic records to start; 500 each subsequent year of participation

    • Data must be CLIA- or ISO-certified

    • Limited Data sets as defined by 45 C.F.R. § 164.514(e) will be provided

    • If de-identified datasets are provided, the process must adhere to the project’s established protocol

  • Agree to provide the requested clinical data elements

  • Maintain IRB approval

  • Meet data standards and deadlines

  • Participate in meetings

  • Participate on committees and subcommittees

  • Execute the Master Participation Agreement and agree to all exhibits, including the Data User Agreement

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