American Association for Cancer Research

Support and Advocacy Groups—U.S. and Canada, A-K

Accelerate Brain Cancer Cure
http://Abc2.org
1-202-419-3140
1717 Rhode Island Ave., N.W., Suite 700
Washington, DC 20036

The organization Accelerate Brain Cancer Cure (ABC2) funds the development of new treatments and also offers information about patient care, clinical trials and research advances for brain cancer patients.


Adenoid Cystic Carcinoma Organization International
http://www.accoi.org
P.O. Box 112186
Tacoma, WA 98411

Adenoid Cystic Carcinoma Organization International provides information about adenoid cystic carcinoma, a rare head and neck cancer, to people affected by the disease. It also offers support services in several different languages. On its website, the organization maintains a list of international resources, information on treatment options, a directory of doctors who treat adenoid cystic carcinoma, and information about clinical trials.


African American Women in Touch
http://www.qualityoflife.org/aawit/
1-574-647-1000
Memorial Hospital & Health System
615 North Michigan St.
South Bend, IN 46601

African American Women in Touch operates out of the Memorial Hospital & Health System in South Bend, Ind. The organization educates African-American women about breast cancer, provides information on early detection, and offers free mammograms to women who cannot afford them. It also provides a network of support through its monthly support meetings and annual health care symposium. African American Women in Touch provides transportation to treatment, wigs and free prostheses to women facing breast cancer.


American Cancer Society
http://www.cancer.org
1-800-ACS-2345 (1-800-227-2345)
1875 Connecticut Ave., NW, Suite 730
Washington, DC 20009

The American Cancer Society (ACS) is a nationwide community-based health organization. The ACS educates the public about cancer, raises funds for cancer research, and runs support groups across the country. The society's website provides educational materials such as a guide to treatment options, information on how to find a clinical trial, and information on finding resources in your own community.


American Lung Association
http://www.lungusa.org
1-800-LUNGUSA (1-800-586-4872)
1301 Pennsylvania Ave., NW
Washington, DC 20004

The American Lung Association is a national organization dedicated to the prevention of lung diseases. The association provides educational materials on lung health, treatment decisions and research, including information related to lung cancer. It also provides smoking cessation support programs and information on the dangers of smoking and secondhand smoke. The American Lung Association advocates for anti-smoking laws and for tougher penalties for tobacco companies. The association has affiliate branches nationwide and operates a toll-free information hotline.


BC Cancer Agency
http://www.bccancer.bc.ca
1-604-877-6000
675 West 10th Ave.
Vancouver, British Columbia V52 1L3
Canada

The BC Cancer Agency (BCCA) educates the people of British Columbia and the Yukon about cancer. The BCCA provides information about prevention, screening and early detection. It also educates people about treatment options, including alternative therapies. In addition to its informational services, the BCCA also has one-on-one support services and support groups.


Black Women's Health Imperative
http://www.blackwomenshealth.org
1-202-548-4000
1726 M Street, NW, Suite 300
Washington, D.C. 20036

The Black Women's Health Imperative is a health education, research, advocacy and leadership-development institution. Its website provides information, educational materials, news and other resources related to health issues facing black women.


Breast Cancer Action
http://www.bcaction.org
1-877-2STOPBC (1-877-278-6722)
55 New Montgomery St., Suite 323
San Francisco, CA 94105

Breast Cancer Action (BCA) is a grassroots organization of breast cancer survivors and their supporters that educates people about breast cancer issues. The group's website has downloadable flyers and fact sheets on breast cancer issues. BCA also provides information for newly diagnosed breast cancer patients.


The Breast Cancer Fund
http://www.breastcancerfund.org
1-866-760-8223
1388 Sutter St., Suite 400
San Francisco, CA 94109

The Breast Cancer Fund works to identify environmental and other preventable contributors to breast cancer and it advocates for their elimination. The fund, which also educates the public about cancer prevention, produces a monthly e-newsletter and fact sheets, which are all available on its website.


Breast Cancer Network of Strength
http://www.networkofstrength.org
1-800-221-2141 (English)
1-800-986-9505 (Spanish)
135 South LaSalle St., Suite 2000
Chicago, IL 60607-3908

Breast Cancer Network of Strength (previously known as Y-ME National Breast Cancer Organization) provides culturally sensitive breast cancer services and resources for individuals who would like to know more about the disease. The organization’s website hosts breast cancer message boards on which participants can discuss a wide variety of topics, such as survivorship issues or advice for newly diagnosed patients. The group offers a 24-hour breast cancer hotline with interpreters in 150 languages. Callers to the hotline are matched to a survivor, patient or supporter who has had a similar experience with breast cancer. Breast Cancer Network of Strength has affiliate chapters throughout the country. It also operates a wig and breast prosthesis bank.


The Breast Cancer Research Foundation
http://www.bcrfcure.org
1-866-FIND A CURE (1-866-346-3228)
60 East 56th St., Eighth Floor
New York, NY 10022

The Breast Cancer Research Foundation is dedicated to preventing and curing breast cancer by raising funds for innovative research and increasing awareness of good breast health. The foundation has a monthly e-mail newsletter and hosts an annual conference.

 

CancerCare
http://www.cancercare.org
1-800-813-HOPE (1-800-813-4673)
275 Seventh Ave.
New York, NY 10001

CancerCare provides counseling, online and telephone support, educational information and financial assistance to patients, families and caregivers who are dealing with all types of cancer. The organization offers specialized programs that focus on the unique needs of caregivers, children and young adults, patients with rare or advanced cancers, and individuals facing end-of-life issues. CancerCare’s services are available in English and Spanish. Programs are provided by trained oncology social workers and are completely free of charge.


Cancer and Careers
http://cancerandcareers.org

Cancer and Careers provides support to women who are either working during cancer treatment or returning to work after treatment. The organization’s website hosts discussion boards on which women can talk to career coaches about the challenges they face in returning to the workplace. The website also provides information about employees’ legal rights in the workplace and offers advice about how to talk to supervisors and co-workers about cancer. Cancer and Careers publishes informational booklets in both English and Spanish and also publishes a booklet specifically for women living in the United Kingdom. The organization also offers information for employers about how they can support employees who are working during cancer treatment.


Cancer Hope Network
http://www.cancerhopenetwork.org
1-877-HOPENET (1-877-467-3638)
2 North Road, Suite A
Chester, NJ 07930

The Cancer Hope Network provides free and confidential one-on-one support to cancer patients and their families. All of its support volunteers are specially trained cancer survivors.


Cancer Really Sucks
http://www.cancerreallysucks.org
1-319-393-9681
P.O. Box 11264
Cedar Rapids, IA 52410-1264

Cancer Really Sucks is designed to help teenagers who have a loved one with cancer. The website hosts forums and monthly chat rooms in which teens can connect with other teens to discuss cancer-related issues. The website also offers advice from mental health professionals and social workers about how to cope with a loved one's cancer.


Cancer Wellness Center
http://www.cancerwellness.org
1-866-292-9355
215 Revere Drive
Northbrook, IL 60062

The Cancer Wellness Center provides support groups for people living with cancer in and around Northbrook, Ill., as well as individual support services and services for couples and families. The center also hosts a variety of stress-reducing workshops including Qigong, meditation and yoga classes, and spirituality discussion groups. 


The Carcinoid Cancer Foundation Inc.
http://www.carcinoid.org
1-888-722-3132
333 Mamaroneck Ave., #492
White Plains, NY 10605

The Carcinoid Cancer Foundation provides information on treatment options and clinical trials for carcinoid cancer patients. It also offers a list of doctors in the United States and Canada who specialize in treating carcinoid cancer. The organization's website includes a directory of U.S. and international carcinoid cancer support groups.

 

Caring for Carcinoid Foundation
http://www.caringforcarcinoid.org
617-848-3977
198 Tremont St, Box 456
Boston, MA 02116

The Caring for Carcinoid Foundation (CFCF) is dedicated to discovering cures for carcinoid, pancreatic neuroendocrine, and related neuroendocrine cancers. Along with its focus on research, CFCF supports patients and caregivers by providing them with complete and up-to-date information. CFCF directs 100 percent of all individual donations to breakthrough scientific research.


The Center for Patient Partnerships
http://www.patientpartnerships.org/
1-608-265-6267
975 Bascom Mall, Suite 4311
Madison, WI 53706

The Center for Patient Partnerships is an advocacy and education program that advocates for the needs and rights of people facing life-threatening diseases, including cancer, all around the world. The Center for Patient Partnerships helps patients understand their diagnoses and treatment options, deal with illness-related work issues, and handle insurance issues.


The Childhood Brain Tumor Foundation
http://www.childhoodbraintumor.org
1-877-217-4166
20312 Watkins Meadow Dr.
Germantown, MD 20876

The Childhood Brain Tumor Foundation provides information about brain tumors, cancer research and survivorship for the families of children with brain tumors. The foundation publishes articles about brain tumors on its website and in a newsletter.

 

Children's Neuroblastoma Cancer Foundation
http://www.cncfhope.org
1-866-671-2623
360 W Schick Rd., Suite 23 # 211
Bloomingdale, IL 60108

The Children’s Neuroblastoma Cancer Foundation (CNCF) is a non-profit national health organization committed to finding a cure for neuroblastoma through research, education, awareness, and advocacy. CNCF initiatives educate the public about a disease dramatically lacking in awareness and funding. It serves as an advocate for families, as well as a liaison between healthcare providers and families for informative resources and grants for researchers.


Children's Cause for Cancer Advocacy
http://www.childrenscause.org
1-301-562-2765
1010 Wayne Ave., Suite 770
Silver Spring, MD 20910

The Children's Cause for Cancer Advocacy provides educational materials such as information on clinical trials, and news about biomedical research funding and legislation. In addition to its educational resources, the organization publishes an e-mail newsletter.


Colon Cancer Alliance
http://www.ccalliance.org
1-877-422-2030
1025 Vermont Ave., N.W., Suite 1066
Washington, DC 20005

The Colon Cancer Alliance (CCA) provides newly diagnosed patients with a variety of support services, including information about ways to deal with the financial burden of medical treatment. The CCA also offers educational resources for survivors' families, friends and caregivers.

 

Colorectal Cancer Association of Canada
http://www.colorectal-cancer.ca
1-877-50-COLON (1-877-502-6566)
5 Place Ville Marie, Suite 1230
Montréal, Quebec H3B 2G2
Canada

The Colorectal Cancer Association of Canada (CCAC) provides information about colorectal cancer prevention, screening and treatment. It also connects survivors to support groups around Canada and online. The association advocates for a national screening program and for better access to colorectal cancer treatment in Canada. There is an advocacy tool kit available on the website. The CCAC offers services in English and French.

 

Colorectal Cancer Awareness
http://www.crcawareness.com
Colorectal Cancer Awareness maintains an Olympus-supported awareness website and provides consumers with the opportunity to learn more about the latest colon cancer research, screening options, patient stories, risk assessments and other medical resources.

 

Corporate Angel Network
http://www.corpangelnetwork.org
1-866-328-1313
Westchester County Airport
One Loop Road
White Plains, NY 10604-1215

The Corporate Angel Network arranges free travel on corporate jets for cancer patients, bone marrow donors and bone marrow recipients who are traveling to cancer treatment centers. Its website has information on how patients can make arrangements for their flights. The website also has a short list of resources for cancer patients.


CureSearch
http://www.curesearch.org
1-800-458-6223
4600 East-West Highway, #600
Bethesda, MD 20814-3457

CureSearch's mission is to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care. The organization's website provides information about treatment and care for pediatric cancer patients. It includes special webpages for parents and patients.


Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org
1-866-288-RISK (1-866-288-7475)
16057 Tampa Palms Blvd. West PMB #373
Tampa, FL 33647

Facing Our Risk of Cancer Empowered (FORCE) provides information for women who have a high risk of developing breast or ovarian cancer. The organization offers information about hereditary cancers, risk management, and the medical and lifestyle options that are available to high-risk women. FORCE has a toll-free helpline, a message board and a chat room through which women can discuss issues that face high-risk individuals.


Family Caregiver Alliance
http://www.caregiver.org
1-800-445-8106
180 Montgomery St., Suite 1100
San Francisco, CA 94104

The Family Caregiver Alliance (FCA), which provides information and support to caregivers, publishes factsheets about caregiving issues in English, Spanish and Chinese. The organization also offers advice about how to handle caregiving responsibilities and the health impacts that stress can have on caregivers, and it also provides online support groups


Fertile Hope
http://www.fertilehope.org
1-888-944-HOPE (1-888-944-4673)
P.O. Box 624
New York, NY 10014

Fertile Hope provides information about fertility and fertility risks to cancer patients and survivors. The organization offers information about fertility options and adoption, and maintains a database of reproductive specialists around the country. It also helps people find financial aid to help cover the cost of fertility treatments. Additionally, Fertile Hope provides an online message board on which individuals can discuss a fertility issues with others facing similar challenges.

 

Fight Colorectal Cancer
http://www.fightcolorectalcancer.org
1-877-427-2111
1414 Prince Street, Suite 204
Alexandria, VA 22314

Fight Colorectal Cancer, formerly C3: Colorectal Cancer Coalition, demands a cure for colon and rectal cancer. They educate and support patients and caregivers, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo. Fight Colorectal Cancer offers patients information about prevention, screening, treatment options and clinical trials. The organization actively advocates to improve cancer research, policy and awareness.


Fighting Chance
http://www.fightingchance.org
1-631-725-4646
P.O. Box 1358
Sag Harbor, NY 11963

Fighting Chance provides services for people living with cancer in Long Island, N.Y. Among its resources are monthly support group meetings and oncology social workers who are available for individual support and counseling. The organization publishes a resource guide with information about treatment and clinical trials as well as listings for support and transportation services. 



Foundation for Women's Cancer
http://www.foundationforwomenscancer.org
312-578-1439
230 West Monroe, Suite 2528
Chicago, IL 60606

The Foundation for Women's Cancer, formerly the Gynecologic Cancer Foundation, is a national organization that works to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment. The foundation publishes brochures and educational materials about gynecologic cancer. The foundation also supports research and training related to gynecologic cancers. The foundation’s Women’s Cancer Network offers information about risk assessment and clinical trials and has a database of doctors who treat gynecologic cancers.


Friends of Cancer Research
http://www.focr.org
1-703-302-1503
2231 Crystal Dr.
Suite #200
Arlington, VA 22202

Friends of Cancer Research is a nonprofit organization that aims to accelerate progress toward better tools for the prevention, detection and treatment of cancers. The organization raises awareness about cancer and educates the public about cancer research. It also publishes a monthly newsletter.


GIST Cancer Research Fund
http://www.gistinfo.org
1-845-634-6060
55 Sawmill Rd.
New City, NY 10956

The GIST Cancer Research Fund (GCRF) works to fund GIST research and works to create GIST tissue banks. The organization also provides information and support for patients. GCRF also provides information about pediatric GIST.


GIST Support International
http://www.gistsupport.org
1-215-340-9374
12 Bomaca Dr.
Doylestown, PA 18901

GIST Support International (GSI) is an organization dedicated to educating and supporting patients with gastrointestinal stromal tumors (GIST). GSI provides information tailored for newly diagnosed patients, including a list of medical centers around the world that have experience treating the disease. GSI connects patients to each other through listservs and by phone.

 

Inflammatory Breast Cancer Research Foundation
http://www.ibcresearch.org
1-877-STOP-IBC (1-877-786-7422)

The Inflammatory Breast Cancer Research Foundation educates people about inflammatory breast cancer (IBC). Its website offers e-mail discussion lists and other educational materials. The organization also raises funds for inflammatory breast cancer research and collects tumor samples for its IBC BioBank. The website of the Inflammatory Breast Cancer Research Foundation offers e-mail discussion lists and other educational materials.


Intercultural Cancer Council
http://iccnetwork.org
1-713-798-4617
Baylor College of Medicine
1709 Dryden Road, Suite 1025
Houston, TX 77030-3411

The Intercultural Cancer Council (ICC) is an advocacy group devoted to promoting policies, programs, partnerships and research aimed at eliminating the unequal burden of cancer on racial and ethnic minorities and medically underserved populations in the United States and its territories. It provides cancer fact sheets on its website and sponsors a biennial symposium to promote discussions of cancer in minorities and medically underserved communities.


International Myeloma Foundation
http://www.myeloma.org
1-800-452-2873 (U.S. and Canada)
1-818-487-7455 (International)
12650 Riverside Dr., Suite 206
North Hollywood, CA 91607-3421

The International Myeloma Foundation (IMF) offers a comprehensive range of programs and services for patients, family members and health care professionals. Educational resources are available in 14 languages. The IMF focuses on funding research, providing education, lending support and promoting advocacy initiatives.


International Union Against Cancer
http://www.uicc.org
+41-22-809-1811
62 route de Frontenex
1207 Geneva, Switzerland

The International Union Against Cancer (UICC) is a global association of cancer-fighting organizations that aims to educate people about cancer and control the disease worldwide. The UICC has fellowship and training opportunities for scientists and publishes the International Journal of Cancer. The UICC brings together an international network of patient advocate groups, cancer societies, public health officials, and research and treatment centers.


Kidney Cancer Association
http://kidneycancer.org
1-800-850-9132
1234 Sherman Ave., Suite 203
Evanston, IL 60202

The Kidney Cancer Association funds research, educates families and physicians, and serves as an advocate on behalf of patients. It provides information on treatment options, clinical trials and disease facts. It distributes several publications including the Kidney Cancer Journal. The Kidney Cancer Association also sponsors educational meetings throughout the year.

 

Know Cancer
http://www.knowcancer.com/
email: support@knowcancer.com

Know Cancer has created an environment where the members of the global cancer community interact and learn together to find the information, support, and resources they need to overcome their illness. The site hosts the world’s largest online directory of cancer resources (from cancer treatment centers to yoga centers), an information section with more than 400 articles, cancer news, the Know Cancer Blog, and an interactive online community complete with an Ask the Expert column.


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Nov. 21, 2011