American Association for Cancer Research

Support and Advocacy Groups—United States and Canada, L-Z


Lance Armstrong Foundation
http://www.livestrong.org
1-512-236-8820
1-866-467-7205 (toll-free support services)
P.O. Box 161150
Austin, TX 78716-1150

The Lance Armstrong Foundation (LAF) seeks to promote the optimal physical, psychological and social recovery and care of cancer survivors and their loved ones. The LAF focuses its activities on survivorship education and resources, community programs, national advocacy initiatives, and scientific and clinical research grants. The organization's website features a variety of information and resources for people living with cancer.


Leukemia & Lymphoma Society
http://www.leukemia-lymphoma.org
1-800-955-4572
1311 Mamaroneck Ave., Suite 310
White Plains, NY 10605

The Leukemia & Lymphoma Society provides a variety of services for newly diagnosed and long-term survivors, while also supporting basic and translational research on blood-related cancers. The organization's website hosts several discussion boards and offers many resources that include news, event listings and treatment and clinical trial information. Resources are also available at the LLS Advocate Center for those who want to get involved in their initiative. The society provides support to adults and children with cancer as well as to caregivers. It publishes informational booklets in English, Spanish and French.


Linda Creed Breast Cancer Foundation
http://www.lindacreed.org
1-877-99-CREED (1-877-992-7333)
260 South Broad Street, 18th Floor
Philadelphia, PA 19102

The Linda Creed Breast Cancer Foundation offers financial assistance to women in the Philadelphia region who are undergoing breast cancer treatment. The foundation provides free and low-cost mammograms to uninsured and under-insured women. The Linda Creed Breast Cancer Foundation also offers women and their families informational materials and access to cancer detection and treatment resources.The organization’s Rainbow Circle addresses the needs of lesbian, bisexual and transgender breast cancer survivors. The Linda Creed Breast Cancer Foundation also runs Safe Circle, a program for African-American women.


Living Beyond Breast Cancer
http://www.lbbc.org
1-888-753-5222
354 West Lancaster Ave., Suite 224
Haverford, PA 19041

Living Beyond Breast Cancer offers educational programs and services to women and families affected by breast cancer. Its programs include a toll-free Survivors' Helpline (1-888-753-5222), a free quarterly newsletter, publications for African-American and Latina women, and networking programs for young survivors and women of color.


Lung Cancer Alliance
http://www.lungcanceralliance.org
1-800-298-2436 (U.S. only)
888 16th St, NW, Suite 150
Washington, DC 20006

The Lung Cancer Alliance advocates on behalf of lung cancer patients, survivors, families and caregivers. It provides information on clinical trials, treatment options and patient advocacy. Its programs also include a peer-to-peer support network and toll-free information and referral services for people with lung cancer and their caregivers.


Lustgarten Foundation for Pancreatic Cancer Research
http://www.lustgarten.org
1-866-789-1000
1111 Stewart Ave.
Bethpage, NY 11714

Through its website, Lustgarten provides information on pain management and clinical trials for patients with pancreatic cancer and a glossary of cancer terms. The website also features Interview With An Expert, an interview series that provides in-depth information from leading experts in the field of pancreatic cancer. Lustgarten supports pancreatic cancer research by hosting an annual scientific conference and providing research grants to scientists.


Lymphoma Research Foundation
http://www.lymphoma.org

1-800-500-9976 (Los Angeles office) 1-800-235-6848 (New York office)
8800 Venice Blvd., Suite 207 115 Broadway, 13th Floor
Los Angeles, CA 90034 New York, NY 10006

 


The Lymphoma Research Foundation (LRF) promotes lymphoma research by raising research funds and educating the public about the disease. The foundation provides educational materials and support for people living with lymphoma and publishes fact sheets, brochures and booklets on Hodgkin’s and non-Hodgkin’s lymphoma. The LRF’s activities include matching patients with peer support through its Lymphoma Support Network and sponsoring lectures for scientists who conduct lymphoma research.


Malecare
http://www.malecare.org
1-212-673-4920
125 Second Ave., Room 13
New York, NY 10003

Malecare is an organization devoted to the health needs of men. The organization provides information on prostate cancer, testicular cancer and male breast cancer. Malecare also provides information on the sexual side effects of cancer treatment. It also hosts support groups throughout the nation. The organization facilitates cancer support groups for gay men and also reaches out to lesbian, gay, bisexual and transgender (LGBT) people through its LGBT cancer project. Information on the Malecare website is available in a variety of languages, including Spanish, French, Italian and Russian.


Marti Nelson Cancer Foundation
http://www.canceractionnow.org
1-530-756-0291
1520 East Covell Blvd., Suite B5103
Davis, CA 95616

The Marti Nelson Cancer Foundation and its website, CancerActionNow.org, work to make effective and safe cancer treatments available to cancer patients. The website provides information on standard and non-standard treatment options, clinical trials and experimental drugs. The organization is volunteer-driven and provides its services free of charge.


Mautner Project, the National Lesbian Health Organization
http://www.mautnerproject.org
1-202-332-5536
1875 Connecticut Ave., NW, Suite 710
Washington, DC 20009

The Mautner Project is a support and advocacy organization dedicated to improving the health of lesbians and their families, especially those with cancer and other life-threatening diseases. The Mautner Project aims to educate lesbians about their health and to educate health care providers about their lesbian patients. Among its many activities, the Mautner Project coordinates in-person support groups and offers phone support services.


Melanoma International Foundation
http://www.melanomainternational.org
1-866-463-6663
250 Mapleflower Road
Glenmoore, PA 19343

The Melanoma International Foundation provides information on how to detect melanoma and tips on coping with a melanoma diagnosis. The Melanoma International Foundation has an extensive list of melanoma treatment centers on its website.


Mesothelioma Web
http://www.mesotheliomaweb.org
1-877-367-6376

Mesothelioma Web is a website committed to the needs of patients diagnosed with mesothelioma. The site provides answers to commonly asked questions, as well as resources pertaining to treatment options, clinical trials and choosing a doctor. The website has a section devoted to veterans, who are at high risk for contracting mesothelioma. Free information packets detailing the material listed on the site may also be ordered.


Mothers and Daughters
http://www.mothersdaughters.org
1-410-778-1982

Mothers and Daughters is an organization for the mothers of breast cancer patients and survivors. The organization provides support for mothers and matches them with other women who have daughters with breast cancer. Mothers and Daughters also provides support for women diagnosed with the disease. The group publishes informational booklets for mothers and for women who are diagnosed with breast cancer.


Multiple Myeloma Research Foundation
http://www.multiplemyeloma.org
1-203-972-1250
383 Main Ave., 5th Floor
Norwalk, CT 06851

The Multiple Myeloma Research Foundation (MMRF) advocates for the advancement of myeloma research. The foundation provides research grants for scientists who study multiple myeloma and offers information on its website about the disease, treatment options and multiple myeloma clinical trials.


National Brain Tumor Society
http://www.braintumor.org
1-800-770-8287

East Coast office
 West Coast office
124 Watertown St., Suite 2D      
 22 Battery St., Suite 612
Watertown, MA 02472  San Francisco, CA 94111-5520

 
The National Brain Tumor Society (NBTS) was formed in 2008 through the merger of the National Brain Tumor Foundation and the Brain Tumor Society. NBTS provides patients and caregivers with brain tumor information and support. The society hosts special events around the country including an annual gathering that brings patients, families, health care professionals and scientists together.


National Breast Cancer Coalition
http://www.natlbcc.org
1-800-622-2838
1101 17th St., N.W., Suite 1300
Washington, DC 20036

The National Breast Cancer Coalition (NBCC) aims to eradicate breast cancer by focusing government, research institutions and consumer advocates on breast cancer. The coalition informs, trains and directs patients and others in effective advocacy efforts. The NBCC's goals include promoting breast cancer research; improving access to high-quality breast cancer screening, diagnosis, treatment and care; and increasing the involvement and influence of breast cancer survivors and activists in the decision-making processes that impact the disease. The NBCC website provides a list of fact sheets, analyses and position papers related to breast cancer.


National Cervical Cancer Coalition
http://www.stopbreastcancer.org
1-800-685-5531
6520 Platt Ave., Suite 693
West Hills, CA 91307

The National Cervical Cancer Coalition (NCCC) is an organization of cervical cancer survivors, caregivers, family members, researchers, hospitals, pathologists and others who are dedicated to educating people about cervical cancer. The NCCC spreads information about the importance of early detection and advocates for quality patient care. The organization provides support for women with cervical cancer through its Phone Pals and E-Pals programs, which match women with cervical cancer survivors. It also provides information about support for caregivers. The NCCC has several chapters throughout the U.S. and abroad.


National Coalition for Cancer Survivorship
http://www.canceradvocacy.org
1-877-622-7937
1010 Wayne Ave., Suite 770
Silver Spring, MD 20910

The National Coalition for Cancer Survivorship (NCCS) offers online resources for cancer patients, including information on clinical trials and financial advice . The NCCS also provides survivors with a Cancer Survival Toolbox, which is a free audio program designed to help cancer survivors and caregivers develop practical skills to deal with the diagnosis, treatment and challenges of cancer.


National Lung Cancer Partnership
http://www.nationallungcancerpartnership.org
1-608-233-7905
222 North Midvale Blvd., Suite 6
Madison, WI 53705

The National Lung Cancer Partnership works to increase awareness about lung cancer and raise funds for treatment. The organization provides information for lung cancer patients and maintains a calendar of lung cancer events across the country.


National Lymphedema Network
http://www.lymphnet.org
1-800-541-3259
1611 Telegraph Ave., Suite 1111
Oakland, CA 94612

The National Lymphedema Network refers people to lymphedema treatment centers, health care professionals and support groups. The organization also publishes informational materials, including a quarterly newsletter, LymphLink, with news about medical and scientific developments. It sponsors a national conference for health care professionals and an advocacy program for advocates, caregivers and those who have been affected by lymphedema.


National Ovarian Cancer Coalition
http://www.ovarian.org
1-888-OVARIAN (1-888-682-7426)
500 N.E. Spanish River Blvd., Suite 8
Boca Raton, FL 33431

The National Ovarian Cancer Coalition (NOCC) provides a toll-free ovarian cancer information telephone hotline and maintains a website for ovarian cancer support and resources, including information about clinical trials. The coalition also offers information specifically for newly diagnosed patients and caregivers. The NOCC has built a network of chapters in many states across the United States.


Native American Cancer Research
http://natamcancer.org
1-800-537-8295
3022 South Nova Road
Pine, CO 80470

Native American Cancer Research seeks to reduce cancer incidence and mortality in Native Americans. It offers culturally sensitive information and support to Native Americans living with cancer. The organization's website includes information on clinical trials and treatment, as well as materials and support for caregivers.


Native People’s Circle of Hope
http://www.nativepeoplescoh.org
1-877-773-8248
9770 S.W. Ventura Court
Tigard, OR 97223

Native People’s Circle of Hope is an organization of Native American cancer survivors that offers culturally sensitive support and counseling for Native Americans facing cancer. Native People's Circle of Hope operates several chapters in the United States and Canada.


Nueva Vida Inc.
http://www.nueva-vida.org
1-202-223-9100
2000 P St., N.W., Suite 620
Washington, DC 20036

Nueva Vida is made up of Latina breast cancer survivors and Latino health care professionals who are committed to providing culturally sensitive support services for Latinas living with cancer in the Washington metropolitan area. Nueva Vida offers support, education and resources in both Spanish and English.


Oklahoma Brain Tumor Foundation
http://www.okbtf.org
1-405-843-4392
820 N.E. 63rd St.
Oklahoma City, OK 73107

The Oklahoma Brain Tumor Foundation (OKBTF) provides financial assistance, support groups and family and caregiver education for Oklahoma families, caregivers and patients affected by primary brain or central nervous system tumors. The organization also informs patients about clinical trials and oncologists located in the region. The OKBTF works to provide for patients' needs through education, advocacy, research and service.


Oncolink
http://www.oncolink.com
Abramson Cancer Center of the University of Pennsylvania
3400 Spruce St. - 2 Donner
Philadelphia, PA 19104-4283

Oncolink is a website of cancer resources operated by the University of Pennsylvania. It provides information on cancers by type and cancer treatment options. The website also offers information on support and survivorship. The Oncolink website has an Ask the Experts page through which survivors can pose questions to the University of Pennsylvania's team of cancer experts.


Ovarian Cancer Canada
http://www.ovariancanada.org
1-877-413-7970
101-145 Front St. East
Toronto, Ontario M5A 1E3
Canada

Ovarian Cancer Canada provides ovarian cancer education and support to the people of Canada. It publishes a quarterly newsletter which is available by e-mail and it hosts support group meetings for women with ovarian cancer. It also provides support for the friends and families of women with ovarian cancer. All of Ovarian Cancer Canada's services are available in English and French.


Ovarian Cancer National Alliance
http://www.ovariancancer.org
1-866-399-6262
910 17th St., N.W., Suite 1190
Washington, DC 20006

The Ovarian Cancer National Alliance (OCNA) provides educational resources for survivors. It helps women with ovarian cancer deal with insurance and financial issues and provides a support network for them. OCNA focuses on four key areas: public education, public policy, research and communication.


The Ovarian Cancer Research Fund
http://www.ocrf.org
1-800-873-9569
14 Pennsylvania Plaza, Suite 1400
New York, NY 10122

The Ovarian Cancer Research Fund (OCRF) promotes and raises funds for ovarian cancer research and the development of a tool for early diagnosis. The organization also offers support and information to patients, family members and the public. It offers an informational hotline that is staffed by volunteers, many of whom are ovarian cancer survivors.


Pancreatica.org by the Cancer Patients Alliance
http://www.pancreatica.org
1-831-658-0600
149 Bonifacio Place
Monterey, CA 93940

Cancer Patients Alliance is dedicated to promoting awareness, increasing education, and furthering research aimed at Pancreatic Cancer. Its website is a resource for aiding patients and physicians to create optimal treatment strategies, and offers a searchable clinical trials database, frequently asked questions, news, and archives. 


Pancreatic Cancer Action Network Inc.
http://www.pancan.org
1-877-272-6226
2141 Rosecrans Ave., Suite 7000
El Segundo, CA 90245

The Pancreatic Cancer Action Network Inc. (PanCAN) is a national organization that provides educational information, treatment options, clinical trial information and support to men and women living with pancreatic cancer. PanCAN also provides information and support for caregivers. PanCAN hosts workshops for survivors and their families.


Patient Advocate Foundation
http://www.patientadvocate.org
1-800-532-5274
700 Thimble Shoals Blvd., Suite 200
Newport News, VA 23606

The Patient Advocate Foundation is a national nonprofit organization that serves as a liaison between patients and their insurers, employers or creditors. The foundation seeks to ensure access to care, maintenance of employment and preservation of financial stability.


The Pediatric Brain Tumor Foundation of the United States
http://www.pbtfus.org
1-800-253-6530
302 Ridgefield Court
Asheville, NC 28806

The Pediatric Brain Tumor Foundation of the United States (PBTFUS) offers educational materials for parents of children with brain tumors, including brochures and an internet conference series. The organization also raises money for pediatric brain tumor research, awareness and detection.


Pennsylvania Breast Cancer Coalition
http://www.pabreastcancer.org
1-800-377-8828
Trout Run Business Center
344 North Reading Road
Ephrata, PA 17522

The Pennsylvania Breast Cancer Coalition provides support to women in Pennsylvania who are impacted by breast cancer. The organization hosts an annual conference and offers patients the opportunity to interact with other survivors as well as medical professionals and patient advocates. The coalition operates support groups throughout the state.


Pleuralmesothelioma.com
http://www.pleuralmesothelioma.com
2317 North Wickham Road
Melbourne, FL 32935

PleuralMesothelioma.com is one of the leading resources on the web for material on pleural mesothelioma. The site contains information on the disease, including causes, symptoms, prognosis, coping and more. Details can also be found on treatment options, asbestos exposure and legal options. A free informational packet may be requested by visiting the site.


Prevent Cancer Foundation

http://www.preventcancer.org
1-800-227-2732
1600 Duke St.
Alexandria, VA 22314

The Prevent Cancer Foundation (previously known as the Cancer Research and Prevention Foundation) focuses on advancing cancer research and education. The foundation raises money for cancer prevention research and education and provides fellowships for early career scientists. It also advocates for the needs of cancer patients and their families by lobbying at the federal level.


The Prostate Net
http://www.prostate-online.org
1-888-477-6763
P.O. Box 2192
Secaucus, NJ 07096-2192

The Prostate Net provides information and support to help patients decide which courses of action offer the best chance for cure and retention of quality-of-life. It aims to increase awareness of the risks of prostate cancer, simplify the treatment decision-making process through education, and provide access to the tools needed by patients' families and friends to support their decisions.


Research Advocacy Network
http://www.researchadvocacy.org
1-877-276-2187
309 E. Rand Road, Suite 175
Arlington Heights, IL 60004

The Research Advocacy Network (RAN) focuses on education, support and connecting patient advocates with the research community to improve patient care. It develops materials to advance patient-focused research and works to equip advocates for more effective advocacy. The organization hopes to collapse the amount of time it takes for research results to reach community practice.


Sarcoma Alliance
http://www.sarcomaalliance.org
1-415-381-7236
775 East Blithedale, #334
Mill Valley, CA 94941

The Sarcoma Alliance aims to improve and extend patients' lives through accurate diagnosis, improved access to care, guidance, education and support. Its services and programs include survivor and caregiver support groups, online information and individualized information packets. It has developed an assistance fund to help sarcoma patients obtain second opinions from sarcoma specialists across the country.


Sarcoma Foundation of America
http://www.curesarcoma.org
1-301-253-8687
9884 Main St.
P.O. Box 458
Damascus, MD 20872

The Sarcoma Foundation of America (SFA) works to raise funds for sarcoma research. The foundation’s website has information for patients about sarcoma and sarcoma subtypes as well as information about treatment and clinical trials. The SFA has several state chapters.


SHARE: Self-Help for Women With Breast or Ovarian Cancer
http://www.sharecancersupport.org
1-866-891-2392
1501 Broadway, Suite 704A
New York, NY 10036

SHARE offers support to women with breast or ovarian cancer in the New York metropolitan area. Cancer survivors lead SHARE's support groups and staff its hotlines. There are separate hotlines for breast, ovarian and Latina patients; programs for families and friends affected by breast and ovarian cancer; and a variety of support groups and other programs. SHARE offers educational programs on topics such as lymphedema, clinical trials, bone health, hormonal treatments, access to medical care and advocacy.


Sharsheret
http://www.sharsheret.org
1-866-474-2774
1086 Teaneck Road, Suite 3A
Teaneck, NJ 07666

Sharsheret is a national organization of cancer survivors that provides culturally sensitive support and information to Jewish women facing breast cancer. Sharsheret also offers specialized information for the friends and families of breast cancer patients and for women who have a high risk of developing the disease.


Sisters Network Inc.
http://www.sistersnetworkinc.org

1-713-781-0255
2922 Rosedale St.
Houston, TX 77004

Sisters Network increases awareness about the impact of breast cancer on the African-American community. The organization provides African-American women with educational materials about breast cancer risk, symptoms and treatment. Sisters Network maintains support-group chapters in about three dozen states.


The Skin Cancer Foundation
http://www.skincancer.org
1-800-SKIN-490 (1-800-754-6490)
149 Madison Avenue, Suite 901
New York, NY 10016

The Skin Cancer Foundation is a national organization dedicated to educating the public about skin cancer prevention and detection. The foundation’s webpage provides information about different types of skin cancer. The website also features a physician database.


South Carolina Cancer Alliance
http://www.sccanceralliance.org
1-866-745-5680
P.O. Box 2722
Columbia, SC 29202

The South Carolina Cancer Alliance (SCCA) is dedicated to reducing the impact of cancer on all people in South Carolina and eliminating disparities in access, prevention and care. The SCCA hosts a quarterly meeting at the Columbia Conference Center, in Columbia, S.C.
 

Support for People with Oral and Head and Neck Cancer
http://www.spohnc.org
1-800-377-0928
P.O. Box 53
Locust Valley, NY 11560-0053

Support for People with Oral and Head and Neck Cancer (SPOHNC) provides information for people living with oral cancer and cancers of the head and neck. SPOHNC has support groups nationwide and its website offers a list of educational resources, including information on clinical trials.


Susan G. Komen for the Cure
http://www.komen.org
1-877-GO KOMEN (1-877-465-6636)
5005 LBJ Freeway, Suite 250
Dallas, TX 75244

Susan G. Komen for the Cure (previously known as the Susan G. Komen Breast Cancer Foundation) funds research grants and supports breast cancer education, screening and treatment projects in communities around the world through an extensive network of United States and international affiliates. The organization also provides information about breast health and breast cancer, treatment options and community support groups through a national toll-free helpline (1-877-GO KOMEN or 1-877-465-6636) and distributes a variety of educational materials to those affected by breast cancer. Helpline support is available in Spanish.


ThyCa: Thyroid Cancer Survivors' Association
http://www.thyca.org
1-877-588-7904
P.O. Box 1545
New York, NY 10159-1545

ThyCa provides information and support for people living with thyroid cancer. It publishes a newsletter and hosts survivor workshops and an annual conference. ThyCa also hosts local support groups and internet support groups.


The Ulman Cancer Fund for Young Adults
http://www.ulmanfund.org
1-888-393-FUND (1-888-393-3863)
5575 Sterrett Place, Suite 320
Columbia, MD 21044

The Ulman Cancer Fund for Young Adults is an organization dedicated to the needs of young men and women facing the challenges of cancer. The organization offers educational programs about the science of cancer for teens and young adults, runs support groups across the country, and conducts outreach programs that aim to educate communities about cancer. The foundation has a patient navigation program that connects patients with people who can help guide them through cancer diagnosis and treatment. The Ulman Cancer Fund for Young Adults also maintains a scholarship fund for young people who are facing or who have overcome cancer.


Uniting Against Lung Cancer
http://unitingagainstlungcancer.org
1-212-627-5500
27 Union Square West, Suite 304
New York, NY 10003

Uniting Against Lung Cancer, formerly known as the Joan's Legacy, aims to raise awareness about lung cancer and the importance of research. The organization's Joanie Award recognizes journalists who focus on the problem of lung cancer and the foundation also raises money to provide research grants. The Uniting Against Cancer website offers statistics and other information about lung cancer and a list of patient resources.

Us TOO International
http://www.ustoo.com
1-800-808-7866
5003 Fairview Ave.
Downers Grove, IL 60515

Us TOO International is a nationwide prostate cancer education and support network that has more than 320 support groups across the country. Us TOO produces online resources; publishes informational newsletters; advocates for increased funding for prostate cancer detection, diagnosis, treatment and research; and provides resources and support for caregivers, family members and friends of prostate cancer survivors.


Virginia Breast Cancer Foundation
http://www.vbcf.org
1-800-345-VBCF (1-800-345-8223) (toll free)
5004 Monument Avenue, Suite 102
Richmond, VA 23230

The Virginia Breast Cancer Foundation (VBCF) is a grassroots organization committed to the eradication of breast cancer through education and advocacy. The VBCF holds support group meetings and maintains a calendar of breast cancer events in Virginia. It also provides a packet of information for newly diagnosed women.


Virginia Prostate Cancer Coalition
http://www.vapcacoalition.org
1-703-339-0508
10804 Anita Drive
Mason Neck, VA 22079

The Virginia Prostate Cancer Coalition (VPCC) focuses on increasing awareness and screening of prostate cancer. The organization's website has information on prostate cancer screenings, local support groups and events.


The Wellness Community
http://www.thewellnesscommunity.org
1-888-793-WELL (1-888-793-9355)
919 18th St., N.W., Suite 54
Washington, DC 20006

The Wellness Community is a nationwide organization with more than two dozen local chapters. It provides online support groups in English and Spanish and has an online resource guide with information about various types of cancer, clinical trials, and advice on managing treatment side effects.


Wisconsin Multiple Myeloma Support Group
http://www.madison.com/communities/multiplemyeloma
1-608-244-2120
3309 Chicago Ave.
Madison, WI 53714

The Wisconsin Multiple Myeloma Support Group hosts monthly support meetings that include speakers or group discussions. The group also publishes a monthly newsletter that provides a resource list, meeting reminders and notes on new research.


Young Survival Coalition
http://www.youngsurvival.org
1-877-YSC-1011 (1-877-972-1011)
61 Broadway, Suite 2235
New York, NY 10006

The Young Survival Coalition (YSC) is dedicated to the concerns and issues that are unique to young women and breast cancer. The YSC has an online bulletin board that young survivors can use to communicate with one another and it publishes informational brochures and a quarterly newsletter. The organization also has affiliate branches that host meetings around the country. In addition to educational and support services for survivors, the YSC works to educate community and government officials about the reality of breast cancer diagnosis in young women.


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Jan. 26, 2010