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FINDING CURES TOGETHER<sup>SM</sup>

Participation in AACR Project GENIE

Project GENIE's approach to data harmonization is such that each participating organization can continue to operate how it best sees fit while simultaneously contributing its data to the project. There are now 19 institutions contributing clinical-grade genomic and clinical outcomes data to the AACR Project GENIE registry, and more are anticipated to be added in the near future.

Founding Consortium Participants

New Consortium Participants

Informatics Partners

Criteria for Informatics Strategic Partners

  • Significant prior experience in similar projects
  • Secure, HIPAA-compliant infrastructure
  • Established and accepted platforms
  • Significant bioinformatics expertise

Requirements of Participating Institutions

  • Provide 500 genomic records to start; 500 each subsequent year of participation:

    1. Data must be CLIA- or ISO-certified
    2. Limited Data sets as defined by 45 C.F.R. § 164.514(e) will be provided
    3. If de-identified datasets are provided, the process must adhere to the project’s established protocol
  • Maintain IRB approval
  • Meet data standards and deadlines
  • Participate in meetings
  • Participate on committees and subcommittees
  • Execute the Master Participation Agreement and agree to all exhibits, including the Data User Agreement

New Participating Institutions

The open call for new participating institutions is now closed. Please, direct queries regarding participating in the consortium to Shawn Sweeney at shawn.sweeney@aacr.org.

Applicants meeting the participation requirements below were judged based on the following criteria.


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