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Community Resources

Organizations, Agencies, and Websites

Sources of information and support within the cancer community can sometimes seem hard to find, and at other times the options are overwhelming. We’ve organized more than a hundred resources here to make it easier for you to identify the information, services and assistance you’re trying to find. Search below for information on cancer-related nonprofit organizations, advocacy groups, government agencies, research and professional organizations, and informational websites.

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Center for Patient Partnerships (The)

The Center for Patient Partnerships is an advocacy and education program that advocates for the needs and rights of people facing life-threatening diseases, including cancer, all around the world. The Center for Patient Partnerships helps patients understand their diagnoses and treatment options, deal with illness-related work issues and handle insurance issues.

Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention (CDC) is part of the United States Department of Health and Human Services. The CDC website offers information on a variety of health issues, including cancer. Some of the information provided by the CDC includes statistical information on cancer diagnosis in the United States, smoking-cessation programs, and educational materials on cancer treatment and awareness. The CDC website also maintainsa page dedicated to cancer survivorship issues.

Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention (CDC) is part of the United States Department of Health and Human Services. The CDC website offers information on a variety of health issues, including cancer. Some of the information provided by the CDC includes statistical information on cancer diagnosis in the United States, smoking-cessation programs, and educational materials on cancer treatment and awareness. The CDC website also maintains a page dedicated to cancer survivorship issues.

Childhood Brain Tumor Foundation (The)

The Childhood Brain Tumor Foundation provides information about brain tumors, cancer research, and survivorship for the families of children with brain tumors. The foundation publishes articles about brain tumors on its website.

Childhood Eye Cancer Trust

The Childhood Eye Cancer Trust has been a registered charity since 1987 and aims to provide information and support to individuals and families with retinoblastoma (Rb), to raise awareness of Rb, to raise funds for research, and to influence prodessional bodies to ensure optimum service for Rb patients.

Children and Parents Against Cancer

Children and Parents Against Cancer is a nonprofit organization dedicated to helping Russian children living with cancer. The organization provides information about new treatments and other educational and support services to families that have children with cancer. Children and Parents Against Cancer provides services in Russian, English, German and Italian. The organization also advocates for children with cancer by lobbying for better treatment options.

Children’s Cause for Cancer Advocacy

The Children’s Cause for Cancer Advocacy provides educational materials such as information on clinical trials, and news about biomedical research funding and legislation. The organization also publishes an e-mail newsletter.

Children’s Neuroblastoma Cancer Foundation

The Children’s Neuroblastoma Cancer Foundation (CNCF) is a nonprofit national health organization committed to finding a cure for neuroblastoma through research, education, awareness, and advocacy. CNCF initiatives educate the public about a disease lacking in awareness and funding. It serves as an advocate for families, as well as a liaison between healthcare providers and families for informative resources and grants for researchers.

Colon Cancer Alliance

The Colon Cancer Alliance (CCA) provides newly diagnosed patients with a variety of support services, including information about ways to deal with the financial burden of medical treatment. The CCA also offers educational resources for survivors’ families, friends and caregivers.